Universität Bielefeld

© Universität Bielefeld

Interdisciplinary Centre
for Health Literacy

How do you decide? Informed choice in the mammography-screening-programme (InEMa 2.0) ? A longitudinal analysis of information- and participation behaviour

Link: Information for participants (not translated)

12/2017 bis 12/2019

Dr. Eva-Maria Berens (Projektkoordinatorin)
Dr. Sandra van Eckert (Projektmitarbeiterin), Brandenburgische TU Cottbus-Senftenberg, Institut für Gesundheit, FG Gesundheitswissenschaften

Cooperation partners
Prof. Dr. Petra Kolip, Bielefeld University, School of Public Health, WG 4 Prevention and Health Promotion
Prof. Dr. Jacob Spallek, Brandenburg University of Technology Cottbus-Senftenberg, Institute of Health, FG Health Sciences
Prof. Dr. Doris Schaeffer, Bielefeld University, School of Public Health, WG 6 Health Services Research and Nursing Science

Project funding
Own resources of the School of Public Health, Bielefeld University and the Department of Health Sciences, Brandenburg University of Technology Cottbus-Senftenberg

Mammography screening is offered to women from the age of 50 to 69 as a measure for early detection of breast cancer. Themammography screening, however hassome advantages as well as drawbacks. Therefore informed choice for or against participation in the mammography screening programme plays an important role. Therefore, the first InEMa Survey (2012-2014) examined theproportion of informedchoices for or against participation in the mammography screening program among the German population and especially among women with a Turkish migration background. Furthermore, it was assessed which personal and environmental factors affect informed choice for or against participation in the screening programme.The results showed that only about 27 percent of the women made an informed choice for or against participation. Among womenwith aTurkish migration background the proportion was even lower. .

The aim of the project is

- to carry out a longitudinal study of informed choice and "screening careers",
- to add current behaviour, information and attitude to the already existing data on participation behavior and informed choice at the initial decision for or against the participation in the screening,
- to consider other relevant topics (such as diagnostic aspects and health literacy).

About 1000 women who have already participated in the first InEMa study will be invited again to complete a postal questionnaire about several aspects of participation, the informed choice and other relevant issues.



Coronavirus pandemic and health literacy: The coronavirus is currently spreading worldwide. During this pandemic, health literacy must be given special emphasis in order to prevent the new virus from spreading more rapidly. Further information can be found here.

COVID-19 and Infodemic: The COVID-19 pandemic is accompanied by the so-called "Infodemic" (Infodemic). Finding good information, protecting oneself from fake news and untruths and making sensible health decisions in these crises are the main focus. Further information can be found here.

Interview Children's health literacy: Children and young people are an important target group for the promotion of health literacy. However, little research has been done into this area. The Pharmazeutische Zeitung spoke to Orkan Okan of the ICHL about the current situation in Germany. Further information can be found here.

Development of a WHO European Region action plan on health literacy: In February, WHO Europe launched an initiative in Copenhagen to develop a European action plan to promote and strengthen health literacy for the 53 European Member States. Further information can be found here.

Health literacy in the digital age: This was the motto of a conference in Berlin on 04.02.2020. Link

4. HLCA Summer School: "Advancing health literacy during the life course: towards a health literate Europe" takes place at Bielefeld University from 23 to 27 September 2019. Link

Research Symposium: On 2.09.2019 the Research Symposium with the University of Canterbury (New Zealand) will take place at Bielefeld University (Room X-E0-222)

Patricia Wahl (Graf), Alexandra Fretian and Ullrich Bauer report on the topic of "Psychische Erkrankung im Alltag: Tabuisierung und Stigmatisierung" in the youth welfare report 02.19

IGEL Evaluation - Ergebnisse: Effectiveness of a school-based intervention to prevent child sexual abuse (Czerwinski et al.) Download

Die Utopie der Gene: Ullrich Bauer on the influence of genes in DIE ZEIT. Download Download

Ullrich Bauer bei der Child's World Conference (11.-13. Juli 2018). Learning, education and the ethical question of what we offer to pupils. Download

The EUSPR Newsletter The EUSPR Newsletter gives an overview of the German Health Prevention Network.

New article in the Archive of Public Health - Journal, by Domanska, O.M., Firnges, C., Bollweg, T.M. et al. Download

Ullrich Bauer's review of "Stimmungen der Soziologie" als short version and long version

New publications

International Handbook of health literacy
Handbuch Sozialisationsforschung
Präevention von sexueller Gewalt in der Primarstufe
Psychisch belastete Eltern in der sozialpädagogischen Familienhilfe
 Children in times of crisis