Universität Bielefeld

© Universität Bielefeld

How do you decide? Informed choice in the mammography-screening-programme (InEMa 2.0) – A longitudinal analysis of information- and participation behaviour

Link: Information for participants (not translated)

Duration
12/2017 bis 12/2019

Projectteam
Dr. Eva-Maria Berens (project coordination)
Dr. Sandra van Eckert (project employee) Brandenburg University of Technology Cottbus-Senftenberg, Institute of Health, FG Health Sciences

Cooperation partners
Prof. Dr. Petra Kolip, Bielefeld University, School of Public Health, WG 4 Prevention and Health Promotion
Prof. Dr. Jacob Spallek, Brandenburg University of Technology Cottbus-Senftenberg, Institute of Health, FG Health Sciences
Prof. Dr. Doris Schaeffer, Bielefeld University, School of Public Health, WG 6 Health Services Research and Nursing Science

Project funding
Own resources of the School of Public Health, Bielefeld University and the Department of Health Sciences, Brandenburg University of Technology Cottbus-Senftenberg

Background
Mammography screening is offered to women from the age of 50 to 69 as a measure for early detection of breast cancer.Themammography screening, however hassome advantages as well as drawbacks. Therefore informed choice for or against participation in the mammography screening programme plays an important role.

Therefore, the first InEMa survey (2012-2014) examined theproportion of informedchoices for or against participation in the mammography screening program among the German population and especially among women with a Turkish migration background. Furthermore, it was assessed which personal and environmental factors affect informed choice for or against participation in the screening programme.The results showed that only about 27 percent of the women made an informed choice for or against participation. Among womenwith aTurkish migration background the proportion was even lower.

Objectives
The aim of the project is

- to carry out a longitudinal study of informed choice and "screening careers",
- to add current behaviour, information and attitude to the already existing data on participation behavior and informed choice at the initial decision for or against the participation in the screening,
- to consider other relevant topics (such as diagnostic aspects and health literacy).

Approach
About 1000 women who have already participated in the first InEMa study will be invited again to complete a postal questionnaire about several aspects of participation, the informed choice and other relevant issues.

 

Publications

2018
Journal Article

  • Berens, E.-M., Mohwinkel, L.-M., van Eckert, S., Reder, M., Kolip, P., Spallek, J. (2018) Uptake of gynecological cancer screening and performance of breast self-examination among 50-year-old migrant and non-migrant women in Germany - results of a cross-sectional study (InEMa). Journal of Immigrant and Minority Health. Jul 9, DOI: 10.1007/s10903-018-0785-7 [Epub ahead of print]
  • Reder, M., Berens, E.-M., Spallek, J., Kolip, P. (in revision) Development of the Informed Choice in Mammography Screening Questionnaire (IMQ): Factor structure, reliability, and validity. BMC Psychology

2017
Journal Article

  • Berens, E. - M., Riedel, J., Reder, M., Razum, O., Kolip, P., & Spallek, J. (2017). Postalische Befragung von Frauen mit türkischem Migrationshintergrund - Identifizierung, Stichprobenbereinigung und Response im Rahmen der InEMa-Studie. Das Gesundheitswesen, 79(12), 1000-1003. doi:10.1055/s-0035-1564076

Conference Paper

  • Berens, E. - M., Reder, M., Razum, O., Kolip, P., & Spallek, J. (2017). Informed choice in mammography screening program: a survey among first-time invitees in Germany. European Journal of Public Health27 Oxford Univ. Press. doi:10.1093/eurpub/ckx187.213.10th European Public Health Conference, Stockholm, Schweden.

2016
Journal Article

  • Berens, E. - M., Yilmaz-Aslan, Y., Spallek, J., & Razum, O. (2016). Determinants of mammography screening participation among turkish immigrant women in germany - a qualitative study reflecting key informants' and women's perspectives.European Journal Of Cancer Care,25(1), 38-48. doi:10.1111/ecc.12334
  • Spallek, J., Berens, E. - M., & Kolip, P. (2016). Früherkennung – Herausforderung der Informierten Entscheidung“ im Kontext des Mammografie-Screening-Programms. Geburtshilfe und Frauenheilkunde, 76(11), 1117-1120. doi:10.1055/s-0042-112118

Dissertation

  • Berens, E. - M. (2016). Mammographie-Screening bei Frauen mit türkischem Migrationshintergrund - Ein Fokus auf Teilnahme unter Berücksichtigung der Informierten Entscheidung. Dissertation. Bielefeld: Universität Bielefeld.

2015
Journal Article

  • Berens, E. - M., Reder, M., Razum, O., Kolip, P., & Spallek, J. (2015). Informed choice in the German Mammography Screening Program by education and migrant status: Survey among first-time invitees. PLoS ONE, 10(11), e0142316. doi:10.1371/journal.pone.0142316
  • Berens, E. - M. (2015). Teilnahme am Mammographie-Screening bei Frauen mit Migrationshintergrund. Public Health Forum,23(2), 70-72. doi:10.1515/pubhef-2015-0026

2014
Journal Article

  • Berens, E. - M., Stahl, L., Yilmaz-Aslan, Y., Sauzet, O., Spallek, J., & Razum, O. (2014). Participation in breast cancer screening among women of Turkish origin in Germany – a register-based study. BMC Women's Health, 14(1), 24. doi:10.1186/1472-6874-14-24
  • Berens, E. - M., Reder, M., Kolip, P., & Spallek, J. (2014). A cross-sectional study on informed choice in the mammography screening programme in Germany (InEMa): a study protocol.BMJ Open, 4(9), e006145. doi:10.1136/bmjopen-2014-006145

Conference Paper

  • Reder, M., Berens, E. - M., Kolip, P., & Spallek, J. (2014). How to measure informed choice? Results from the German mammographyscreening programme. The European Health Psychologist, 16 (Supplement), 28th Conference of the European Health Psychology Society, Innsbruck, Austria
  • Berens, E. - M., Spallek, J., & Razum, O. (2014). Factors influencing breast cancer screening participation among women of Turkish origin in Germany. In Andalusian School of Public Health (Ed.), 5th EUPHA European Conference on Migrant and Ethnic Minority Health. Granada - Book of Abstracts & Programme (p. 128). Granada, Spain.
  • Müller, K., Reder, M., Berens, E.-M., Kolip, P., Spallek, J. (2014). Informierte Entscheidung im Mammografie-Screening-Programm? Ergebnisse einer Querschnittstudie.Das Gesundheitswesen 76 (08/09). „Permanente Verfügbarkeit in der Arbeits- und Lebenswelt – Risiken und Chancen“ 50. Wissenschaftliche Jahrestagung der Deutschen Gesellschaft für Sozialmedizin und Prävention (DGSMP). Erlangen, Germany.

2013
Conference Paper

  • Berens, E. - M., Fettah, F., Reder, M., Kolip, P., & Spallek, J. (2013). Teilnahme am Mammografie-Screening in Europa - Eine systematische Übersicht von Einflussfaktoren. Das Gesundheitswesen, 75(08-09). doi:10.1055/s-0033-1354018. Gesundheit zwischen Wirtschaft und Demographie. Gemeinsamer Kongress der DGSMP und der DGMS in Zusammenarbeit mit dem MDK Hessen, Marburg, Germany.
  • Berens, E. - M., Stahl, L., Yilmaz-Aslan, Y., Sauzet, O., Spallek, J., & Razum, O. (2013). Teilnahmeraten von Frauen mit türkischem Migrationshintergrund am Mammographie-Screening-Programm in Deutschland. In Markus Löffler, Steffi G. Riedel-Heller (Ed.), Abstractband der 8. Jahrestagung der Deutschen Gesellschaft für Epidemiologie und 1. Internationales LIFE Symposium (p. 161). Leipzig, Deutschland.
  • Berens, E. - M., Fettah, F., Reder, M., Kolip, P., Spallek, J. (2013). Einflussfaktoren auf die Teilnahme am Mammographie-Screening in Europa – Eine systematische Übersicht. In Markus Löffler, Steffi G. Riedel-Heller (Ed.), Abstractband der 8. Jahrestagung der Deutschen Gesellschaft für Epidemiologie und 1. Internationales LIFE Symposium (p. 161). Leipzig, Deutschland.

2012
Book Chapter

  • Berens, E. - M., Spallek, J., & Razum, O. (2012). Breast cancer screening among immigrant women: do we need specific approaches in risk communication? In D. Ingleby, A. Krasnik, V. Lorant, & O. Razum (Eds.), COST Series on Health and Diversity: Vol. I. Health inequalities and risk factors among migrants and ethnic minorities. (pp. 304-318). Antwerp/Apeldoorn: Garant.

Conference Paper

  • Berens, E. - M., Razum, O., & Spallek, J. (2012). Frauen mit türkischem Migrationshintergrund im Mammographie-Screening Programm – benötigen wir eine spezifische Risikokommunikation? Abstractband der 7. Jahrestagung der Deutschen Gesellschaft für Epidemiologie. Regensburg, Germany.

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