Our Congress Visits
Congress visits 2026
- AM
Appearance Matters 11 in Bristol
Universität Bielefeld At this year's Appearance Matters conference in Bristol's historic City Hall, Jana Stucke presented the findings of our qualitative ichthyosis study in a talk entitled "The Impact of Visible Differences on Psychosocial Burden and Participation in Skin Diseases: A Qualitative Study in Ichthyosis". Alina Wacker presented the findings of a qualitative study as a poster presentation: "I look in the mirror and get scared: Stigmatisation Experiences and Body Image in Cutaneous T-Cell Lymphoma Patients: A Qualitative Study ."
The main themes of the congress were body image, visible differences, appearance-based stigma, health education and interventions.
- ADF
52nd Annual Meeting of the Working Group for Dermatological Research in Freiburg
On 5 March, we were guests at the 52nd Annual Meeting of the German Society for Dermatological Research (ADF) and had the opportunity to present our IchthyCare healthcare research study in the Translational Dermatological Genetics working group.
Our presentation entitled "Invisible Burden over Visible Disease - a mixed-method study on disease-related impairment, participation barriers and care experiences in ichthyosis" - in addition to the many exciting contributions from basic and clinical-translational research - above all took a look at the reality of life for patients with ichthyosis.
Our study focuses on disease-related burdens, barriers to participation and experiences of care. Such perspectives are important in order to better understand what needs and challenges patients experience in their everyday lives - and how care can be organised in such a way that it actually reaches them.
We were very pleased with the interested questions, the lively discussion and the new contacts.
- AAD
2026 Annual Meeting of the American Academy of Dermatology Association in Denver
From 27 to 31 March, Professor Sabine Steinke was a guest at the Annual Meeting of the American Academy of Dermatology Association and was able to present our CTCL study in the form of a poster: "Stigmatisation Experiences and Psychosocial Burden in Cutaneous T-Cell Lymphoma Patients: A Qualitative Study".
Congress visits 2025
- EADV
European Academy of Dermatology & Venerology in Paris
Universität Bielefeld Prof. Steinke and her research assistants attended the International Congress of the European Academy of Dermatology & Venerology from 17 to 20 September 2025. Ms Wacker and Ms Stucke presented their research projects and current findings in the form of e-posters. The CTCL project entitled "Quality of Life and Unmet Needs in Cutaneous T-Cell Lymphoma Patients: A Qualitative Exploration of Care Experiences" and the ichthyosis project entitled "Understanding the impact of ichthyosis: a qualitative study on disease-related impairment, participation barriers, and care experiences".
- ADO
Working Group Dermatological Oncology, 35th Skin Cancer Congress in Essen
Universität Bielefeld Prof Steinke and Ms Wacker attended the 35th Skin Cancer Congress of the Working Group for Dermatological Oncology in Essen and Ms Wacker presented a contribution in the form of an e-poster entitled "Care of people with cutaneous T-cell lymphoma in Germany: a qualitative analysis from the perspective of patients and doctors".
- DKVF
German Congress for Health Services Research in Hamburg
Universität Bielefeld Our scientific staff were also represented at the Health Services Research Congress 2025 with their research projects. Ms Stucke gave a presentation on the "Psychosocial consequences of a visible skin disease: A qualitative study on psychological stress and participation restrictions in ichthyosis" and Ms Wacker presented her project in the form of a short lecture entitled "Care experiences, needs and quality of life in cutaneous T-cell lymphoma: a qualitative study on the patient perspective".
- AAD - Annual Meeting
American Academy of Dermatology Association - Annual Meeting in Orlando, Florida
Universität Bielefeld Prof Steinke presented a paper on "Understanding the Burden of Ichthyosis: A Qualitative Study on Impairment, Disability, and Care Experiences" at the symposia of the American Academy of Dermatology Association in Orlando, Florida in spring 2025.
- Research Day Medicine
Research Day of the Faculty of Medicine, Bielefeld University
Ms Wacker presented current research findings from the CTCL project entitled "Quality of life, care situation and needs of patients with cutaneous T-cell lymphoma (CTCL): A qualitative study" at the research day of the medical school OWL on 11 March 2025.
- ADF Symposia
Symposia of the Working Group of Dermatological Research in Berlin
Ms Stucke presented a poster entitled "Participation and Disability in Ichthyosis: A Qualitative Study on Impairment and Care Experiences" at the symposia of the Arbeitsgemeinschaft der Dermatologischen Forschung in Berlin on 13 March 2025.
- DDG
Symposia of the German Dermatological Society in Berlin
Universität Bielefeld On 2 May 2025, Ms Stucke presented an e-poster entitled "Mental stress and care needs in ichthyosis: A qualitative study" as part of the symposia.
